INDIANAPOLIS -- A bill inspired by an Indianapolis boy with an incurable disease is headed to the president's desk.
The "Right to Try" legislation passed the United States House Tuesday, 250-169, meaning it now heads to President Donald Trump's desk to be signed into law.
The bill would give terminally ill patients the right to seek drug treatments that remain in clinical trials and have not been fully approved by the FDA.
The official title for the bill is the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017.
Jordan McLinn is an Indianapolis boy with Duchenne Muscular Dystrophy. In 2015, when then-Governor Mike Pence signed the Indiana version of Right to Life into law, McLinn was present. Pence posted a photo of himself and McLinn Tuesday.
Great to welcome Jordan McLinn back to the @WhiteHouse today. We look forward to the House passing #RightToTry this afternoon to give seriously ill patients a fighting chance. This brave young man is an inspiration to me and many others. Way to go Jordan! pic.twitter.com/RVvSbrQ2RQ
— Vice President Mike Pence (@VP) May 22, 2018
The national bill passed the United States Senate unanimously in August.
“Today’s vote in the House moves us one big step closer to getting my bipartisan ‘Right to Try’ legislation across the finish line," Sen. Joe Donnelly said. "I look forward to President Trump signing it into law as soon as possible. Families in Indiana and across the country deserve the right to try and access potentially life-saving, clinically tested medical treatment to treat terminally ill loved ones before time runs out.”
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